Monday, August 24, 2009

Edie Update

Since birth Edie has had countless ear infections.

November 2008 Edie had a ruptured ear drum.

April 2009 Edie failed her first hearing test and was diagnosed with chronic fluid in her ears, it was recommended she get 'tubes' to alleviate the fluid and better evaluate her hearing issues. She was hearing her world as if she were under water all the time.

May 5, 2009 Edie had bilateral myringotomy tubes put in (tubes).

Two weeks later at her post-op she showed improvements, but to our surprise had a blocked tube! We would have to flush the said ear, and if it were still to be blocked at her next ENT appointment we would have to schedule that ear to be 're-tubed'.

June 11, 2009 She had a well child check at her new pediatrician and she also confirmed the tube was STILL blocked. We followed her directions on how to 'flush' the blockage and kept our fingers crossed until her next hearing test at the ENT.

July 26, 2009 post-op hearing test. She 'passed' her hearing was withing normal limits and NO BLOCKED TUBE!!

July 6th, 7th and 13th, Edie was evaluated by the Elementary School.

Day 1 she was administered:

  • Peabody Picture Vocab Test III A
  • Goldman-Fristoe Test of Articulation 2

Day 2 she was administered:

  • Brigance Diagnostic Inventory of Early Development II
  • Domains: General Knowledge and Compensation

The following week we had a conference and she was 'coded' with a severe articulation disability. An IEP was drawn up and she was to start school the end of August M-Thurs mornings! The twins were to go to a diff school M-Wed afternoons! Well, Paint my car yellow and slap a 'school bus' sticker on it please!

She tested above average on her Day 1 testing. But Day 2 she was difficult to understand in her response to some questions. Choosing and pointing she did great, ask her use the word of what it was, or have her use the noun, it took her a long time to process, and when she did try to imitate the word she just imitated the syllables. She could not use language to respond to the questions and she couldn't 'build' the words. :( She did however use her sense of humor and kept both evaluators laughing with some of her animated responses!! Those of you that know her, know what I mean! She is a comedian.

We have an open house tomorrow, and I will do my best not to cry when we drop her off on Wednesday...sniffle, sniffle....... I'M OKAAAAAYYYYYY!!

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